Cardinal Glennon

Oh how we love the insurance game. Upon arriving at Children's we learned that we were out of network and would have to change hospitals...they did give us 5 days, so generous! So, on Wednesday Drake got to have his second ambulance ride in one week and was transported about 5 miles away to Cardinal Glennon Children's Hospital. Poor guy had to get a new IV, which took 4 tries and one of them swelling up is hand, and a new feeding tube. It wasn't a fun night for him and I was mad at the politics of it all.
As far as Drake's status....
He is opening his eyes a lot more and will nod his head for yes and grunt for no. He started physical therapy yesterday. He really has very little control over his body, but we are seeing small improvements. He did raise his hand on his own last night and that encouraged me. He had another EEG taken yesterday and it showed a slight improvement in brain activity, but still not normal.
He got to ride in a wheel chair and said he liked sitting in it. I am sure it is great to leave his bed for a bit.
We are now off of the IV, but the hook up remains in his hand, and all meds are going through his feeding tube.
Our next big move will be to a Rehab center sometime next week to start more intensive rehab.
The love and support we have received from everyone is overwhelming and so appreciated. The meals, gifts, chores, watching children, visits, prayers, texts, phone calls, and emails are what is helping us get through this. I can't say thanks enough!!!!